Description:
We’ll be sending multiple patients to Miami, FL to share their thoughts, feelings, and experiences around, and taking part in, clinical trials. We’re also looking for caregivers to children with a rare disease or pediatric cancer to share their thoughts on clinical trials and medical research (caregivers to children with clinical trial experience preferred, but it is not necessary). To see an example of the previous project, click here.
Requirements:
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Diagnosis of Parkinson’s Disease, Alzheimer’s, Amyotrophic lateral sclerosis (ALS), rare disease (including pediatric), central nervous system disease, or cancer (including pediatric) by a healthcare provider (Proof of diagnosis will be required to participate)
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Ages 18+
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Experience being part of a clinical trial
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Comfortable sharing your story on video
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Healthy enough to travel to Miami
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US citizen
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Ability to read and speak English (does not need to be the primary language)
Details:
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In Miami
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Multiple dates in February, March, and April
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Video project
Receive:
$1050 + travel expenses
Why Sign Up?
Our partner has developed a very cool technology that we believe will be useful and impactful for many patients and caregivers who have regular or frequent doctor appointments. We’d love to have you join us in spreading the word!
About Savvy Cooperative
Savvy Cooperative is the first and only patient-owned co-op that empowers people to use their health experiences to inform new products and services through surveys, interviews, product testing and more! It was founded by two patients who wanted to make sure people who shared their health experiences were fairly compensated. That’s why we are patient-owned and the majority of our profits go right back to our members!
Barbara Jacoby is an award winning blogger that has contributed her writings to multiple online publications that have touched readers worldwide.